In 1993, the Pulmonology Division opened a Cystic Fibrosis Center to focus the resources of the Division, along with numerous ancillary services of the hospital, on this crippling disease. Cystic Fibrosis is a genetic disorder which affects approximately 30,000 Americans. Once considered a pediatric disease, new treatments and medications now enable children with cystic fibrosis to live well into adulthood.
To assist families who must cope with a chronic illness such as cystic fibrosis, the Center has adopted the latest Cystic Fibrosis Family Education Program. This program, which is intended to assist patients and their families with the management of the disease, helps to improve the quality of life for all family members.
Cystic Fibrosis studies:
Miami Children's Hospital is currently searching for participants in a pediatric cystic fibrosis studies. For more information, click here.